September 2011
65 posts
Since I've gotten like 978 messages asking about...
My all time favorite song is The Greatest Lie
Top 2 from each album:
Juturna - Stop The Fucking Car, In Fear and Faith
On Letting Go - Semi-Constructive Criticism, Living Together
Blue Sky Noise - Imaginary Enemy, Strange Terrain
August 2011
88 posts
Oh My God. speechless.
Thank you Anthony and Circa! You have no idea how fucking awesome this is.
“Don’t be alarmed I feel we’re falling back to ground, don’t be...”
– Oh what else is new? Another Circa Survive song is perfectly capturing my emotions and making things easier to deal with!
Got through my first day of classes without...
And my friends’ dorms are handicap accessible!
6 tags
Tim
When I was younger, probably 13 or 14, I attended a weeklong summer camp for kids with Muscular Dystrophy. In an earlier post I mentioned that this camp is where I first developed a fear of feeding tubes, when a kid’s feeding tube in my cabin fucking erupted like a tiny volcano while he was sleeping one night. If it’s ok with all of you, I’d like to tell you about one more incident that took place...
heavysunlight asked: holy fucking shit - i've been following you for awhile now... your attitude is awesome and you're hilarious. i just read you're last post - you're from/in bethlehem?! i'm from williamsport but i go to moravian college. what a small world! what school do you go to?
blah
School starts tomorrow, which BLOWS. I have classes Mondays, Wednesdays, and Fridays, so hopefully I will still have time to keep writing and get my school work done. If not, book > school.
Also, I think I will have another post done by tonight.
Also also, hurricane Irene was extremely lame.
3 tags
pickle
I’m finding it extremely difficult to write about other people, particularly people I don’t like or have had negative experiences with. The problem is that these people and the experiences I’ve had with them are important parts of my life, so I feel like it’s necessary to include them in my blog/book. However, it feels completely wrong to be talking shit about people and...
Article My Dad Wrote About Andrew and Me (from... →
JUST GOT MY TICKETS TO SEE CIRCA SURVIVE AT THE...
As you can see, I’m very excited.
1 tag
I need every single one of you to do me the...
My friends have all be so unbelievably supportive of my blog since I began. Many of them took the time to help me promote my blog on their facebooks and other websites, and I never really had a way to show them how truly thankful I was.
Well now I have a great way to start giving back to them for what they did.
One of my best friend’s band, Traded Memories, is in a contest with a bunch of...
Newspaper interview was pretty sweet!
But I’ve decided that from now on my blog is just going to be pictures of cats and drunk girls stumbling in the street.
Just kidding. Maybe.
7 tags
The local newspaper is coming to do a story on my...
They’re bringing a camera crew too. I’m trying to think of funny stuff to do or say haha.
1 tag
My shoes are always brand new.
I want to be on Dr. Phil, but for something completely unrelated to my disease, just to confuse people.
“Wait… so that kid is addicted to shopping?”
IT WORKED!
It’s currently pouring outside but Anthony Green replied to someone who sent him my blog. Couldn’t be happier. Thanks everyone, and Anthony, for taking the time to do this!
Also, since $25,000 electric wheelchairs don’t get along with rain too well, I’ll be writing all day!
12 tags
Phlegm! ft. Jon "The Man Himself" Burcaw
As winter begins to approach each year, I start getting nervous about the inevitable cold I’m going to catch in the upcoming months. My level of anxiety increases dramatically, although you’d never notice it, and the fear of getting sick makes itself a nice little nest in the back of my mind, where it lives until summer returns to scare it away. Every winter, there comes a day when I wake up on a...
Ahhh Coffee...
Everything is fine now. Writing all day, unless I get side-tracked, which is likely. Thanks for your nice messages last night, and I apologize for being a whiny 12-year-old girl, I was just mad/upset about too many things at once so I thought I should write it down to look back at in the future.
I just can't handle everything right now.
And I don’t even feel like I’m being a bitch. Can’t wait til I can get this fucking surgery off my mind.
3 tags
Decided the current story I was working on was too...
It was about why I don’t like anyone I’ve ever met that uses a wheelchair. While it was funny, it was more of a “joking around with your friends” kind of funny, as opposed to “the entire world could read this, including the people you make fun of” kind of funny. I saved it and might come back to it eventually, but for now I switched gears and am writing a post...
Does anybody know how I would go about contacting...
I have no idea how any of this works. Haha
2 tags
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My brother turns 16 tomorrow!
Happy Birthday Andrew!!!
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Anonymous asked: Do you have a bucket list? If so, care to share?
3 tags
Whip My Dick Out
When you rely on other people to help you do mostly everything, there are inevitably going to be some embarrassing situations that arise. Today was one of those days. I woke up and went to Becca’s house to chill for the afternoon, while my brother went swimming at his friend’s house. Becca and I sat outside all afternoon getting tan, and I drank a can of Pepsi when it started to get unbearably...
I can't wear deep V's because they fall off my...
5 tags
My Life Is Redonkulous
As you may or may not know, I am officially getting a permanent feeding tube via surgery on September 13th. For those of you who don’t know the whole back-story that led up to me needing this feeding tube, read this and this first. Anyway I met with my new pulmonologist in Delaware last week. He was a really chill and understanding dude, but I had lost 6 pounds since my last check-up last summer,...
Every time I buy fast food I tell myself you have...
1 tag
I Can't Stop Tweeting
My twitter is A LOT less serious than my tumblr, so if you are not easily offended and enjoy laughing, you should come follow me @shaner528
missmella asked: You've said before that your parents noticed something was up when you were like 2 months old. Can you tell us what exactly they noticed that was different? I'm just wondering because all 2-month-olds look pretty much the same to me, haha.
Link to donate to SMA research. →
A couple of you have asked me about ways to donate to the research for a cure for SMA. The link above will take you to the Families of SMA website and there’s a donation button in the top right. This site also has lots of info about SMA if you’re interested.
3 tags
So wrapped up with what you can't have, you don't...
Anonymous asked: ever had a girlfriend? are you suspicious of girls attracted to you?
Anonymous asked: Have you ever done anything with the Make A Wish foundation?
3 tags
I had Becca give me a fauxhawk to make myself more...
Anonymous asked: When you sleep, are you disabled in your dreams?
Anonymous asked: i want to have your children
1 tag
9 tags
Dear Nike, Please Let Me and My Wheelchair Endorse...
When I was very young, I learned that being in a wheelchair did not mean I couldn’t play sports. Obviously, the way I play sports is a little different, actually a lot different, than the way most people play, but I have found a way to involve myself in almost every sport my friends have ever played. Throughout my life I also experimented with joining organized sports leagues designed specifically...
4 tags
Nothing you ever planned on ever turns out the way...
You can follow me @shaner528 on twitter if you...
2 tags
4 tags
Happiness is always an option.
jofirth asked: What's up, I'm Jo. If you could do absolutely anything in the world, what would it be?
Anonymous asked: i reallly like when you ask me to put deodorant on<3 please ask me more
ccanduc asked: Thank you for sharing everything you have with us readers! You're an excellent and of course, very funny writer!
How many people in your life have you told about this blog? I know if the beginning you hadn't told everyone. How is telling them going?
How many people in your life have you told about this blog? I know if the beginning you hadn't told everyone. How is telling them going?
