October 2011
52 posts
Come chat with us!
www.stickam.com/laughingatmynightmare
September 2011
65 posts
Might get on to skype with some of you guys...
Perfect timing.
A few weeks ago, I was nominated to serve on my college’s discipline review committee. This committee is made up of a few students, a few professors, and a few faculty members. Basically, when a student fucks up big time and is facing a suspension or large fine for whatever they did, the student presents his or her case to this committee, and they decide whether the student is responsible and what...
I'm having spaghetti for dinner but I'm so used to...
New Story... Tonight!
this one is on the shorter side, but it’s pretty funny and I still can’t believe it happened. i’ll try to have it up around 9. I have an essay to write first!
1 tag
Got this email tonight. Press Reblog. Hard.
Hi!
I absolutely love your blog. Your enthusiasm for life is awesome and reading your stories always cheers me up. You’re such a bro. Anyway, I’m sorry to bother you about this, but I was hoping you could help me with something. I have a really great friend named Sarah. She’s sixteen, and two days ago she was diagnosed with Leukemia. She and her family have been through so...
Check out this article about my blog! →
4 tags
I DON'T WANT TO BE STUDYING PAIRED SAMPLES...
I just want to write my book and make millions of dollars and buy a handicap accessible trampoline! Is that so much to ask!?!
kicktype1 asked: How's it goint with the feeding tube? Feeling fat? (: x
I saw a sign that said, "Only Losers Litter!"...
So really, the sign should say, “Everyone Litters!”
4 tags
Walrus Fetus
Since my disease is progressive and medical researchers are taking their good old time in searching for a cure, the best I, or anyone with SMA, can do is attempt to slow the progression of the disease. I’m not talking about steroids or weightlifting; my muscles are going to continue to deteriorate no matter what I do because my body didn’t feel like developing the necessary proteins for muscle...
Help my close friend Amy raise money for cancer...
http://pages.lightthenight.org/cpa/Harrisbg11/AHess
Posting the new story at 9:30!
New story tonight. Promise.
4 tags
I was contacted by my first publisher today!!!
Oh I completely forgot! I'll take a video of...
Hahahaha
I have a ton of reading due tomorrow, and still...
There may or may not be a new post up tonight. I have to get blood work done at one, then I have to go to a nursing home tonight at six to get weighed. yea… what!?!
It turns out that the nursing home by my house is like the only fucking place in Pennsylvania that has a digital scale, which my doctors in Delaware want me to use to report how much I’ve gained. So that should be fun; old...
1 tag
“I’m not ever going to say that it’s my mission or my life goal to inspire people...”
– Me, in an interview for dailydot.com. I just wanted to share it because I’m proud of my cute little mind for thinking this thought.
There is too much going on right now!
Don’t hate me if the next long story isn’t up for a few days! :D
Out of the hospital and on my way back to...
I’ll get back to writing tomorrow! :D
Thanks for all the messages!
Hospital Update
I’ve been in the hospital for a little over 24 hours and so much has been going on that I’m just getting some free time to catch up on my messages and let you guys know what’s going on. When I arrived at the hospital yesterday, I had to sign myself in, since this is the first time I’m being admitted as an adult. The check-in lady informed me of my rights and told me I could discharge myself at any...
3 tags
Waiting for my doctors to give me the official...
I can’t wait to get back to normal life!
I've got real big plans.
2 tags
Doing homework in the hospital might be the worst...
You should click this and buy my dad's book! You... →
First of all, this young-adult/fiction chapter book can be enjoyed by people of all ages. It gives a unique and interesting insight into the world of a child with Muscular Dystrophy. I got my writing abilities from my dad, so if you like what I write, you will love this book.
Second, A PORTION OF EACH BOOK SOLD WILL BE DONATED TO THE MUSCULAR DYSTROPHY ASSOCIATION! I put it in all caps because...
1 tag
Got the tube in on the first try, and my eyes...
Hey feeding tube, smd.
1 tag
Sooo feeding tubes are terrible.
Working on the story right nowski. I should be done by tonight, assuming the hospital doesn’t explode or my doctors don’t decide to sign me up for a random heart transplant for no reason.
You never know though…
Off to Delaware!
The excitement is overwhelming.
3 tags
Market Research (New Idea)
A long time ago, I proposed the idea of making shirts with my blog name on them, as a way to help spread the word. I decided shirts were too expensive/complicated, but I have a new idea that I think will be 1000 times better and more awesome!
Wristbands.
I want to make silicone (livestrong style) wristbands that say Laughing At My Nightmare!
There are 3 reasons I want to do this:
1. To...
Anonymous asked: Does having the feeding tube mean you won't eat anything else anymore?
Hospital Shmoshpital
On Thursday, all of my doctors got together for a big, super-huge meeting to discuss my situation and what the best course of action would be. I need to gain weight, but the feeding tube surgery is extremely risky and my leg contractures make it impossible to do the easy way. Yesterday, one of my doctors called to explain the plan they had developed. Here is that plan: I am officially going to be...
zieglerzone asked: How has technology and science helped you?
I want to be on To Catch a Predator as the child...
Anonymous asked: So I just read your first post and I was wondering...what are your views on suicide, you know, considering everything you have to go through? P.S. Your one of my biggest inspirations. Thanks for having a tumblr(:
“If you keep holding on to what we’ve lost, you’re gonna drag down...”
– Anthony Green (surprise surprise)
simius asked: I hope I am not too curious but who is paying all your doctor's bills? Do you have an insurance? And what about people in your position without an insurance?
Anonymous asked: When you were little, what did you want to do when you grew up? (Or maybe you still want to do that.)
carnivaltravesty asked: Does your family/friends know about your blog?
If I do go the nasal feeding tube route, I've...
It will be gold.
If I got a boob job, I would probably gain a pound...
Just looking at all my options.
Some good and some bad.
First of all, I’m not in the right mindset to clearly analyze and understand how I’m feeling right now, so this post is just going to be a quick update on all the shit that went down today. Once I get some more answers and allow everything to sink in, I will write a more detailed account of what’s going on.
Basically, while the surgeon was examining me today he realized how...
My life is such a fucking joke.
After a 4 hour appointment, and the discovery of even more risk factors, it looks like I’m not having the feeding tube surgery once again. For the record, I totally called this happening.
I’ll explain later…
