May 2012
120 posts
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hahaha
I always feel super awkward driving through the waiting room at the rehab clinic (where I go for aquatic physical therapy) in my fluorescent yellow bathing suit. All the old people, who obviously don’t understand I’m there for pool therapy or that I bought a bright yellow bathing suit to be funny, smile at me like, “Oh how adorable! The little wheelchair boy picked out his own...
April 2012
52 posts
miss-cali-rose asked: I want to ask you a complicated question but I'm sure everyone does that so...whats on of your favorite jokes? :)
In a great mood
Tomorrow night is my Dad’s somethingth annual Dance Jam Banquet that he puts on to raise money for the MDA. Becca is coming home tonight, so she and all my Moravian friends will be there, which is guaranteed to be a fun night. Tomorrow is also my last day of classes for the semester. I’ve got two finals that I’ve already decided not to really worry about next week, then...
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Check out this blog! →
This is a new blog written by a 20-year-old with the same disease as me. He’s a cool dude and I have read some of his stories and they’re really great. He’s going to post his first story soon, but he asked me to give him a shout out so that he would have an audience when he posts. It’s definitely well worth your time to add him to the blogs that you follow.
Just bought a GoPro HD Hero 2
She is absolutely beautiful. Andrew and I are currently brainstorming stunts for this summer.
What do YOU want to see us do?
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Me trying to expand Pat's musical horizon
Me: Listen to the whole album Deja Entendu... just sit and listen to it and don't distract yourself. I think you will like it.
Pat: Only if you roll down Linden Street naked on a skateboard made of razors.
Just hit 50,000 followers. I can't believe it.
Thank you to all of you for making the past year such a crazy experience! I promise there’s lots more on the way.
rainbow-dreams-1direction asked: bitch you not using tumblr right. you know what some tumblr is? DO YOU KNOW WHAT SOME TUMBLR IS?! you supposed to posts pictures booboo. not some gay as fake celebrity shit. toodalloooo gayboy.
Hot tub, coke float, Philadelphia Union soccer...
and continuing to ignore my final essays. The makings for a great night.
One more week of classes!
Then the fun begins!
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Grab a LAMN, Inc. wristband quick!
They’re going fast! Only $5 to support MD research and the message of positivity that we’re trying to spread! Thanks!
http://www.laughingatmynightmare.com/apps/webstore/
Our model Pat:
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Job Interview
Every time I think about applying for a job, I imagine how potentially awkward but funny a job interview would be for me. So… since I have two huge essays to write within the next week, I decided to procrastinate more and write a hypothetical job interview. For this endeavor I’m going to pretend that I am applying to be a manager at corporate offices for Taco Bell (my dream job). Some aspects of...
New story tonight!
It’s a fun one. I think you will enjoy it :)
First official LAMN, Inc. board meeting was a huge...
We’ve got real big plans.
barkatthemoon77 asked: Ok so i'm a brit, and well i'll be honest your cause is not that well known round here, and I would like too help out... So anything I can do? As in promoting this cause or anything?
Anonymous asked: I learned of you when NBC10 featured you. I loved your inspiring story and shared it with my 8th grade language arts students as we discussed “To What Extent We Can Understand Someone Else’s Experience?” They had a few questions for you:
- Which famous person would you most like to meet and why?
- Is there a particular event in your life that caused you to adopt...
- Which famous person would you most like to meet and why?
- Is there a particular event in your life that caused you to adopt...
Anonymous asked: For the sheild, try plexiglass
We're trying to design a shield for my chair
So that I can play street hockey goalie and not have to worry about a 90mph hockey ball plummeting through my chest.
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Wristbands are now available!
http://www.laughingatmynightmare.com/apps/webstore/
Only $5 and free worldwide shipping!
casualennui asked: So, I'm a little confused about your nonprofit. Is the money received from the bracelet sales/whatever else specifically going to SMA research or MDA research in general? Thanks for clarifying!
The webstore is live!
Get your Laughing At My Nightmare, Inc. wristbands now! Help us stop muscular dystrophy diseases and spread positivity!
http://www.laughingatmynightmare.com/apps/webstore/
Only $5 and shipping is free! Yes, we ship international.
Thanks!
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josueplaza asked: Have you ever thought about doing an AMA (Ask Me Anything) on Reddit?
Going to a muscular dystrophy research lab in Delaware tomorrow to meet the doctors who will be using LAMN funds to do their research!
sorry mom
I think the walls in my house are moving because I keep crashing…
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Another story from my childhood
“Mom, PLEASE!” I whined. She had to say yes. She had to. “I just don’t understand why you need to be up on his porch,” she replied for probably the 5th time, starting to get annoyed. “Mom, we want to have a HUGE battle and there are no good places to hide our army men down on the sidewalk. All you have to do is carry me up there, and I’ll stay there for a long time, so you won’t have to...
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Photos
Hey! Send us some pictures of you and your family/friends “enjoying life.” We want to share how people are having fun and living life to the fullest on our FB and twitter. You can send your pictures to laughingatmynightmare@gmail.com or tag @LAMNightmare on Twitter. Please include a short description of each photo. Have fun and be creative!
Anonymous asked: Is this for real?
used-to-have-a-fitted-cap asked: How did you get your disease? :(
Anonymous asked: what would you do if ellen contacted you to come on her show?
Anonymous asked: How can I purchase a bracelet? I want dozens!! :)
Anonymous asked: How do you get over the anger/self-pity that comes along with realizing your life will never be "normal" like everyone else. I ask because I recently received some life-changing news that make me feel like I will never be "normal" again and I don't know how to let go of the anger and the "why me".
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To all my new followers:
You guys should definitely check out my nonprofit www.laughingatmynightmare.com
and our first project: http://www.youtube.com/watch?v=5mkozRJQ2YI
ohsnapitsnik asked: If you could go out on a date with any celebrity of your choosing, who would it be?
Anonymous asked: what would be one thing you'd say to someone who stares at you (no need to censor if you could)?
Anonymous asked: I totally dont mean to sound like some d-bag, but, how do you swim?
blicky417 asked: Which circa song hits home, gives you that great sense of euphoria?
busybeingperfectlyme asked: What do you enjoy doing on your free time?
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Whoops!
It’s 3:00PM on a humid day in July. Instead of racing around outside with my neighbors like I should be, I’m sitting on the toilet, strapped into my specially adapted backrest, quietly weeping at my ridiculous situation. What is wrong with me? On my bare lap sits our house phone, waiting for me to gather the nerves to call Ben. *** A few hours before I found myself crying on the toilet,...