LAUGHING AT MY NIGHTMARE

Description

Hello, I'm Shane Burcaw. I'm 20 years old and I have a disease called Spinal Muscular Atrophy that will eventually kill me. I have been in a wheelchair since I was two. I love to laugh and my life is pretty funny. Allow me to share...

If you're new to my page, things will make more sense if you read my very first post before you start reading the other ones. There is a link down below to all of my longer stories.

Twitter: @shaner528
Email: shane.burcaw@gmail.com
Address: P.O. Box 3398 Bethlehem, PA 18017

I recently started a nonprofit to spread positivity and raise money for muscular dystrophy research! To learn more and to support us visit laughingatmynightmare.com

Also, I am a Junior at Moravian College in Bethlehem, PA, studying English.

Circa Survive keeps me sane.

Links

Anonymous asked:
in all your pictures your hand are at your chest t-rex style, is this because of your disease r do you just pose super sexy for the camera?

Yup, those are called contractures, which basically means my muscles have become stiff like a frozen rubber band. In my most recent picture, I’m laying on my back, so gravity is working against me, which is why my arms are flopped awkwardly on my chest. They’re not locked in that position when I’m sitting, but my elbows don’t straighten much past 90 degrees (a right angle) and my wrists only go slightly straighter than you see in that picture. Weird, right?

Even though I’m not personally a fan of the “severely atrophied and contractured” look, all that really matters is I can still use my arms and hands with a pretty high level of functionality, given the circumstances. So for that, I am grateful.

Plus, some people think I look like a cute little baby T-Rex, and that doesn’t bother me either.

Post Info
Posted on Friday 16 November 2012.
6 months ago.
Filed under:
Notes: 106